jedi mind tricks don’t work on days like today.

Diddy,

Tonight, as I was brushing my teeth before bed, the doorbell rang. Standing at the front door was a strange man, who asked if he could borrow some eggs. Before I could answer, and tell him I don’t have butter, sugar, or flour – much less eggs, he grabbed me and threw me in the back of his rusty van that reeked of peed-soaked carpet. He bound my arms and legs and shoved a gag in my mouth. He drove and drove until we reached his rundown shack, smack in the middle of nowhere. As he threw me onto the cold ground, he told me I’d be his bitch forever and ever.

Ok. So that didn’t actually happen. But I conjure up scenarios like these to do my best  to put things into perspective. Because being kidnapped from my own home, shoved into the back of a smelly van, and forced to be a creeper’s sex slave would be just a little bit worse than the day I had today. My attempts to pull Jedi mind tricks on myself don’t work, because even though I logically realize that my day is better than someone’s who is held captive, or someone’s who lives in poverty-stricken, war-ravaged conditions, and is definitely better than someone’s who has the great misfortune of working at craft store for a living – I still hate every, single day here in this life without you.

Today was especially shitty because it was the first day of school. For most parents, this is an exciting time of year – marked by photos of their happy children, on the front steps of their happy homes. For most parents, the start of a new school year is a welcomed change. For bereaved parents, back to school bonanza does an exquisite job of displaying signs of torture everywhere. Over-sized backpacks, school supplies, yellow school buses, car drop off lines. Everywhere I turned, I was faced with painful reminders of more ‘firsts’  that you will never experience. It was one sucker punch after another.

It’s too much sometimes. By sometimes, I mean almost always. It’s especially challenging because, even if I tried, this annual occurrence is not only monumentally painful, it is one which I simply cannot avoid. I am a teacher, for the love of Jesus, Joseph and Mary. So not only am I smacked right in the face by the back-to-school torment; I have to actively participate in the god-forsaken event. Part of my job is to be the ‘welcome wagon’ to all the eager, awkward in the most adoring way, teenagers – with sun-kissed skin, donning their spanking new back-to-school outfits. But, behind every ‘welcome back’ smile there is a floodgate of tears threatening to tsunami my classroom at any given moment.

Everything I wished for is not. And the brutal truth of it burns. It burns new holes in me – it  burns in the old places, that I foolishly thought were repaired, too. It aches in places I didn’t know could ache. It screams in a pitch that reminds me of the wretched moment my life changed forever. This is one of the many realities of being a bereaved parent that no one talks about….milestones – that should have been – which rip open the scabs of buried grief and create ones of new grief – all at once, and all over again.

And, boy, do you fucking bleed.

I know you wouldn’t be starting school this year. In fact, I know your first day of Kindergarten wouldn’t be for exactly three more years. To be precise, it would be in September of 2017. But that doesn’t stop me from imagining what it would be like to be able to take just one picture of you starting school. A toothy grin, or a goofy face. A perfectly matched outfit…that I laid out for you the night before. Or, a perfectly mismatched one…that you insisted on choosing yourself. Blurry or in focus. Sunshine or rain. Our front steps, or the front steps of your new school. I’d take it. Just.one.picture. Because just one picture would have given us five more years together. Five more years to kiss your sweet head. Five more years to hear your voice. Five more years to tuck you in at night. Five more years to memorize every nook and cranny, and idiosyncrasy that make you perfectly and uniquely you. Five more years to watch you run wild and free.

If only I could walk hand and hand with you to your classroom, or as far as you would let me before you wrangled your grip free, and bravely reassured me, “I’m okay, Momma.” If only I could be annoyed by the lengthy back-to-school shopping list. If only I could have held back the tears of wondering how you got to be my ‘big Kindergardener’, as you excitedly rushed into the day ready to partake in the rite of passage children across the land look forward to experiencing. If only I could post your (adorable) picture on my Facebook wall. If only I could race home to greet you, with an excited smile and an enormous hug, at the end of your very first day of school. I would give my whole life to experience just one more minute. Just one minute longer is always and forever the cry of a bereaved Momma.

Every ‘first day of school’ makes me sick. And it makes me sob. I know most people have no idea these thoughts and feelings flood my soul. You never having a first day of school is a distant thought in their minds. It is far too ‘long gone’ to stay in the present. Especially in the frenzy of their beloved children’s back-to-school hoopla. For the rest of the moms, time moves at warp speed. But for a bereaved mom, time stands still.

So here I stand, the world around me paused at a screeching halt, with one foot in the life we once had, and one foot in the life I now have. With a broken heart and a tortured soul…wondering, imagining, longing for all what could have and should have been. Here I stand, with wobbly knees and tired, tired legs – straddling time and space.

And although my life is not as bad as it could be, it is still so very hard to live this life without you.

melted-crayon-1

I would’ve always packed you the very best lunches.

Stay with me, Sweet Boy.

xoox,

Momma

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She is here. But part of her is elsewhere for eternity.

Paxton, I made it through the fuckwad days in May that I hate so much. I went to work on May 8th. That was  a major accomplishment in it of itself. Last year, I willed myself a million times over to die in my sleep. I didn’t get out of bed until the girls showed up, dug me out from underneath my pillows and held my hands as they guided me downstairs. They kept me busy: setting up new phone/cable service, buying tv’s, taking toys and contraptions you never got to use from the basement to Goodwill, sorting and packing some of your other things and safely storing them in the attic, cleaning out extra-large items abandoned in the garage, organizing copious amount of medical bills which somehow got backlogged in the insurance system, and attempting to make me eat. This was just three months after your Dad moved out, and left me holding a shit ton of bags of shit. Thank goodness for Momma’s girls; they swarmed in and helped me take care of a lot of that shit. Alas, this year I navigated my way to work. While my body was present, my mind was far, far away…recounting every detail of May 8th, 2012. Scene by scene, the reel started playing in my mind. I relived every minute that led us to Dr. D’s, which lead us to the ER, which lead us to the HOT unit, which ultimately lead us straight to the depths of Hell. Right around the time of day you were officially diagnosed, Allison appeared, grabbed my hand and said, “Let’s go.” She knows just how to make Momma listen. Your girlfriend, Ms. Nicole smiled knowingly and said, “Go. I got you. Please go.” And, just like that, two of Momma’s loveliest lovelies saved her heart once again. Allison had just come from Children’s Hospital. Somewhere along the way, I mentioned how much it would mean to me if PaxLove was spread throughout the HOT unit and the Clinic on May 8th. Allison and Erin found a way to make it happen – even though it meant taking a 1/2 day off of work, and exposing their vulnerable hearts to the very place in which you ended your brave battle. They packed your Treat Cart to the brim with ‘happy’, and rolled it right through the HOT unit and right into the hearts of so many brave, little warriors. Have I mentioned how much I love those girls? After work, I met up with Lala and her crew at Papa & Gg’s house. Lala received a “Cold Water Challenge” earlier in the week; she fittingly saved her debut for the most appropriate day. The point of a “Cold Water Challenge” being to jump into cold water, or make a donation to the charity of your choice. Living in Wisconsin, particularly on the heels of a Polar Vortex, finding cold water was NOT a challenge. Willing oneself the mental toughness to take the plunge – a far different story. Lala wasn’t fazed; she said, her super-hero nephew demonstrated far, far more bravery in his (ittsy bittsy pinkie) than she could in a lifetime, muchness by jumping into some cold ass water. Not doubt.  So, into Papa’s lake she went  In turn, she got to challenge three people to do the same.  She challenged her friend Sandy on the east coast, Beth Kille in Madison, and Britta in Cali – to jump or donate $24 – to mark 24 months since your diagnosis. Her battle cry was heard – and despite braving the cold waters, those ladies donated anyway. And they donated $100 each! You certainly have a way with the ladies, lil’ man. Mother’s Day was a bitch to navigate. I spent the day with Lala, the three musketeers, and Nana. Once again, I was physically present; but my heart was a million miles away – searching for you. The day took forever to end. Although I strained to feel you with me, to see a sign, sense a glimmer of your soul somewhere in my surroundings….I didn’t. And despite being in the company of some of the ones I love the most – I felt completely and entirely hollow and alone. It is oft said that being a mother is the hardest job in the world. Well, being a bereaved mother – is unbearable. The countdown is on…15 more days until stupid May is over. (Then I begin dreading the arrival of July.) I am so sorry you got sick. IMG_2098

Stay with me, Sweet Boy…

xoox

Momma