Lil Diddy Bop,
When I woke up this morning, it took me a few blinks to remember I was in Florida. I came here with two of my loveliest lovelies on a hunt for sunshine. It is the second time I’ve been to Florida and the upteenth time I’ve set out on a big o’ jet airliner and fled for unfamiliar land since you’ve been gone. No matter where I roam, the pain of missing you follows.
No matter how far, how often, or how abruptly I flee from home it is impossible to ‘run from grief’. To salt the wound, there also isn’t anything that feels right about being able to jump on a plane at any given time, and fly off to any given destination. I am supposed to be at home, with my two year old son – pinching his cheeks, and my pennies to save up for his first trip to Disney World. Instead, I’m laying in a strange bed, alone, in Boca Raton. Putting me about 185 miles from Disney, and 180 degrees from the life I should be living.
It’s impossible not to think about how wonderfully different life would be if cancer didn’t steal you. Glimmers of that life play through my psyche regularly – whether I stay at work later than normal, run multiple errands (in order to avoid going to an empty home), once I arrive at my barren, quiet, perfectly tidy home, on the weekends…and every minute in between. When I embark on an excursion outside of my day-to-day routine, I am stuffed with extra heaps of guilt, sadness, rage – and a hefty side-serving of confusion. How did this all happen?
My super-kind-extra-special lovelies are keenly aware of the angst such situations cause my heart. They couldn’t have been more supportive in their reassurances that everything would be alright. Even though I’ve heard that before and everything turned out the exact opposite of alright – I couldn’t help but trust them implicitly. This is just one of the many reasons I love them.
Yesterday, as I was drying my hair, the all-too-familiar feeling of my heart lurching up into my throat started. Anxiety. It is as normal now as grief. And as breathing. I was certain something had happened to your “specials” in transit to Nana’s. I should’ve left them at home: in the fire-proof safe, locked in the fire-proof cubby, in the depths of the now fire-proof, bullet-proof, zombie-proof basement. But the fear of zombies conquering Milwaukee in my absence trumped my fear of the risk of having Nana take your ‘specials’ to her house for safe-keeping. Dammit. I chose wrong again. The other shoe had dropped. It all made sense. It also explained why no one was calling me. They didn’t want to ‘interrupt my vacation’ with more bad news.
My mouth filled with pre-puke saliva as I frantically lunged towards my phone. With a shaky hand, I pressed the button to call Nana. She didn’t answer. I shook out a text. No reply. I called Lala. No answer again. I sent her a text too. Again, nothing. I called Nana back. Oh my GOD… the fire – the car accident – the ER -the next death – the next memorial – the next obituary to write…the zombies. And, just like that – the loosely stacked ruins of my AC world, collapsed like a house of cards caught in the vortex of a tornado.
I know there are people who find my thoughts neurotic, paranoid, or psychotic. Rest assured, those people don’t know what I know. I know all too well that there are absolutely no guarantees about anything in this life. I know that babies die for no explainable reason, from unthinkable accidents, from horrific acts, and from the biggest asshole murdered of all time: cancer. I know that evil exists. I know that some people are born without a soul. I know about things I never knew about knowing.
I live in a perpetual state of waiting for the other shoe to drop. I am constantly on edge, on guard, on call for something else to happen…again. Any time, anywhere. I am always expecting to trip over another dividing line. Another before and after.
Then, my phone rang. Nana. My mouth ran dry. Before she completed the first sentence: I exhaled. Everything was fine. I can always tell by her voice what she’s feeling even without her saying the precise words. Your special things were safe. Nothing was lost, tattered, ruined, burned or stolen. There was no accident, nor was there a trip to the ER. No one died. There was no memorial to plan. My house did not burn to the ground. As an added bonus: the zombies did not attack – yet.
I realize that my thoughts, fears, worries and obsessions are not remotely similar to those of mothers who are lucky enough to not have a dead child. I wonder if anyone realizes they shouldn’t be? Trust me, I’d trade my non-normal existence for their normal existence any day of the week. But my normal disappeared on May 8th, 2012…and was obliterated on July 2, 2012. All traces were expunged from my existence in February 2013. Anyone who feels the need to cast judgement, make assumptions, or spew conjecture about the thoughts which run through my mind on a perpetual loop should do the universe a giant favor – and fuck the fuck off.
I feel better knowing your “specials” are safe. I feel better because I’m writing to you. I feel better because I just said fuck a bunch of times too. Thank you for sending these lovely ladies into my universe…and for holding their hearts hostage. Half the time I am convinced the only reason they put up with me is because they are so deeply in love with you.
I wish you were here. Or, thatI I was there. I wish we were together – anywhere.
The sunshine always makes me think of you.
Stay with me, Sweet Boy.
P.S. Today is your Uncle Stephen’s birthday. Sneak a butterfly kiss onto his cheek at the point in the day when you feel he needs it most.