a fragmented sea of love. because you’re missing from everything.

Hi Diddy,

I did my best to keep myself as busy as possible today. With no responsibility, no schedule, nowhere to be, and no one to be any where in particular with – this proves more challenging than I can sometimes manage.  After running all of the errands I could possibly think of, I starting heading towards home. As I approached my house, which loosely resembles a place I once knew as home, I kept driving. I drove, and drove nowhere in particular. Somehow I reached the lakefront and instinctually pulled over.

I looked out into Lake Michigan as far as I could see. My eyes took in the sights of the water meeting the horizon and everything in between: a flock of birds flying in v-shaped pattern, sail boats gliding atop the crystal blue waters, a man walking his dog, an old couple walking hand in hand, and a woman pushing a toddler in a stroller. Yet all I really saw was a world continuing to turn on its axis and creatures, big and small, continuing to live. The audacity of it all – despite the fact that my baby got cancer and died – caused me to scream at the top of my lungs. The echoes of my primal scream will always leave me more scared of myself than a normal person could ever understand. It is a sound that remains foreign even to the very body which produces it. I haven’t screamed like that in awhile now. I guess I needed to release some of the pain which was compiling inside of me before I burst into a million pieces. I may not scream as often as I should, but I still cry everyday. Sometimes in the shower when I have to face another day without you, sometimes when I’m trying to fall asleep and can’t kiss you good night – and don’t even know where you are, sometimes in my car when I am suffocated by the booming silence of your absence. Other times, in the middle of doing absolutely nothing, the tears start pushing on the back of my eyes – forcing me to cut and run somewhere that I can let them fall without having to answer anyone when they inquire, “What is wrong?” Everything is wrong.

After my ‘primal shit show’ for one, I did what I usually do when I don’t know what else to do. I go find your cousins.  One of them always finds a way to mute my sadness for at least a little while. When I walked in their house, the three little people who have saved my life a million times over greeted me with overwhelming excitement and gestures of love I know will only last a few more precious years. The time will come (far before I’m okay with it) when their crazy aunt who comes and steals kisses from them in exchange for candy and gum will be replaced by best friends, girlfriends/boyfriends, teenage priorities – and I’ll have to suffice with a mere glance in my direction, and a barely audible, “Hey DD.” For now, I will suck up their good lovin’ with every cell in my tired body.  

As if it were a perfectly normal query, Sennet said, “DD what’s your favorite song in the whole world?”  Taken off guard by his question, and enamored by the fleeing innocence he intermittently projects, I stammered, “Uhhh. Geez. I’d have to think about it, Sennet.” Alina chimed in, “Try?…just because it burns doesn’t mean you’re gonna die…you gotta get up and try, try try.” Just like that a lump started to rise in my throat. I constantly worry about the emotional trauma these little people have endured because of cancer, because of me, because of the people I let them fall in love with only to have them be ripped from their lives.  They should not know about the pain that has become commonplace in their once care-free hearts. No child should. Most certainly not these babes.  My 7 year-old niece shouldn’t know that Try could very well be her aunt’s life theme song.  Before I could compose a response, Sennet countered, “No. Yellow.”  And the three of them began to sing, “…look at the stars, look how they shine for you…and it was all yellow too.” It was the most heartbreakingly beautiful sound I have heard in a very long time. Luckily, I was safely tucked away in the bathroom – where my tears fell silently into the sink. As their serenade faded your best buddy, Finn, confidently proclaimed, “Well yeah, Yellow is DD’s favorite song. It’s about Paxton. And Paxton is her favorite per-shun.”  The three of them quickly concurred. And so it was settled.

It took all my strength to push the tears and the vomit back down into their hiding places, and come out of the bathroom before it was ‘too long to be there’. I wanted to collapse on the ground in between the sea of love created by these three little humans and tell them to fall asleep with me until we woke up in a different lifetime. A lifetime where you are among us, and there are four little humans laying among me. But, I knew I couldn’t do that.  It would break your cousins already vulnerable hearts. So I put on my fake smile and crouched down to be eye level with them and asked about Mindcraft and Plants and Zombies, sleepovers and Safety Town. All the while, I sustained a parallel conversation in my mind with you. The one where I apologize that you are not here too, that I carry the guilt with me every day for not protecting you, that I worry every second of the day if you are happy, safe, and warm enough, and that I hope against all hope that someday, we will be together again.  Meanwhile, I held the smile on my face for the picture I know will be taken by those three little minds. I will forever wonder how in the world I can look happy, if only in a picture inside the mind of a child, when I am still so broken, sad, and shattered.  

It truly is amazing…the indomitable nature of a human soul.

I miss you. I love you. I hope you are running wild and free.

 

Stay with me, Sweet Boy.

xoox

Momma

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a defense lawyer stops me in my tracks. because he knows you.

Paxton,

Tonight I ended what was a very difficult week with a “not-so-happy” hour with two of my lovelies from BCHS. I wasn’t in the mood to be there, but familiar with their persistence in integrating me into the world at-large, I knew it’d be easier to join them. So I did. I made it to about 6:30 before I was ready to leave. As I approached my car, a man parked next to me quickly popped his head out from the backseat of his car where he was putting his child in a carseat. He said, “Excuse me. What does your license plate say?” I knew he was talking to me; but I froze – speechless and paralyzed. He continued, “Does your plate say, Paxlove”? I studied his sincere face and steadfast eyes as I faintly replied, “Yes. Paxlove.” He excitedly persisted, “Is it for Paxton? The baby? The little Peaceful Warrior?” I almost collapsed onto the goddamn pavement.

Before my legs had a chance to give out, he broke into a 40 yard dash in my direction. As he jogged towards me he yielded his “Paxton” bracelet in front of him like a white flag. Meanwhile my friend took over the talking part and proudly proclaimed that I am your Momma. Once in front of me, he put the bracelet an inch away from my eyes and exclaimed (repeatedly) that he wears everyday. He went on to explain how he learned about you and your brave fight. He said he attended PaxFest and donates to your foundation. Most importantly – he told me how he finds daily strength and inspiration through your brave soul.

As I attempted to absorb the scene unfolding around me, I noticed his wife had come out of their car and was now standing just steps behind us. Her hand was over her mouth. Tears were streaming down her face. As our eyes met, we innately stepped towards each other and hugged tightly. Through a tear-filled voice, she told me how you changed the way she mothers her son…and that she marvels at how I find the strength to continue to live without you. These kind-hearted people said so many endearing things to me. All of which I will hold close to my heart for many, many moons to come. The dad ended the conversation by telling me he is a defense attorney and that whenever he is in trial, he rubs his “Baby Paxton” bracelet to find strength and clarity. For he is reminded that whatever he or anyone in the court room is experiencing, or has experienced, pales in comparison to what “Baby Paxton” endured.

The entire time this couple talked to me, I literally did not utter a single word. In hindsight, my inability to speak makes me want to punch myself. I should have taken out my wallet and shown them pictures of you. And told them how everyone who was lucky enough to be in your presence noticed how peaceful (and beautiful) you were. I should have shared with them how (before you were sick and stopped feeling hungry), you would stop mid-suck while eating your bottle, smile right at me – and then happily resume eating. Or let them know your favorite CD is Coldplay’s Rock-a-bye Baby, and that you loved when we would dance around the dining room and sing, “I like to eat, eat, eat apples and bananas.” I should have relayed the stories of how you’d stare into Mr. Cow mirror and “Ooouuuooo!” so fiercely at the site of your adorable reflection that the entire house would erupt in laughter.

On top of failing to tell them any of the many things that make you incredibly special, I deeply regret that I didn’t think to ask them their names. While I hugged the husband, I did manage to eek out the words, “Please don’t take that bracelet off.” (He assured me that he wouldn’t.) With the exception of one simple sentence, I stood mute as two strangers told me how you have changed their lives. In exchange, they allowed me to embrace them as though they each contained a small part of you. I am sorry if I hugged them too tightly. I am more sorry I didn’t tell them about any one of the multitude of things which make you my uniquely perfect Paxton.

Very early this morning I was overcome by one of the greatest moments of despair I have yet felt. I don’t entirely know why. I guess this roller coaster of grief, bereavement, or grief-that-interrupted-the-initial-fucking grief will never make any sense. I do know that I literally begged you to send me a sign if you were still with me. Anything to prove that despite the emptiness in my stomach and the hollowness in my heart, I am not entirely alone in this world.

I believe with all of my heart, you sent that man to me tonight. You rescued me from the abyss of grief which I must consciously ward off from swallowing me whole. More than anything in this entire world, I would give anything – anything – to be the one saving you. It should have been me. Never you.

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I miss you. I love you. I’ll look for you in my dreams.

Stay with me, Sweet Boy.

xoox.

Momma