june gloom. and i really can’t stop throwing up.

Paxton,

Momma has been feeling like a giant pile o’ poo lately. It’s the type of ‘don’t feel good’ where I sincerely struggle to get out of bed every morning. When I finally force my feet to the ground, and my legs to take consecutive steps in front of the other – I go into auto pilot until I make it into work. Once I arrive, I have to fight to stay upright and continually wonder if “today will be the day” I finally collapse on the ground and give up. Ambling through every day like this is just another part of my new ‘normal’. A ‘normal’ that only a bereaved parent could possibly understand. Anyone who can’t relate to my ‘normal’ – should occupy their spare time thanking the sun, the moon, and the stars for being the lucky ones.  Not understanding my ‘normal’ means they haven’t had their child die in their arms.

I guess I took a giant step back in my grief, because my body feels as empty, yet mysteriously heavy, as it did in the initial weeks following your death. I thought I had finally made it past the darkest of dark places; but I should know by now that this grief will continue to comes in waves for the rest of my life. When I least expect it, the riptides of grief come crashing to around me and attempt to pull me under. With each return, the undertow becomes harder and harder to fight. Somewhere along the way, someone very near and dear to me shared his painfully keen insight on grief. He said, “Believe me, sweetheart, the grief will never go away. It’ll come in waves for the rest of time. It has to come in waves; if it came all at once, no human could ever survive its toll.” He couldn’t have been more accurate. It will come as no surprise when I tell you he is a bereaved father. Only a parent who has lost a child could know of such unrelenting and unceasing pain.

Maybe I am feeling extra sad because another school year has come and gone. And, now I’m facing what I know will be another long and lonely summer without you. I can’t help but imagine all the things you and I would do together to fill our endless summer days. Momma and Diddy: a Dynamic Duo.  This summer, in particular, would be especially fun-filled. Two and a half – a perfect age for all types of perfect mischief. How in the world will I survive another summer without you? Why can’t we be together running wild and free? How did cancer ever end up inside your tiny body? Why didn’t I take you into the doctor sooner? How didn’t the treatment work? Where are you now? When is somebody going to end this sick fucking joke and bring you back?

I still think that, Diddy. Even after all this time, I have moments when I actually think someone is going to show up at my door and hand you back to me. I want to scream sitting here on my couch, staring at my favorite picture of you – so alive, so animated, so happy. Even your eyes are smiling at me. As I look into your blue eyes, for a split second, I wonder if you were even real. The life I knew with you seems so long ago. Another lifetime ago. In the deepest parts of my soul, I know it was another lifetime. I know that lifetime is gone. But, I still try to cling to the moments I had with you. As time goes on it gets harder to remember. My old memories are being replaced by new memories: as if they are in competition with one another. I promise you this: neither are going to win this fight.

I want my old memories, especially the good memories with you, more than anything in this world. The good memories are so hard to recall. Sometimes remembering them is just as painful as remembering the bad, cancer memories. I wish I could say I have found just a little peace with all of this, but I have not. I wonder how parents who’ve watched their child die, find peace. Do they ever truly find it, or just fragments of it here and there? Feeling at peace about you dying is never going to be reality for me; and that’s fine. At least I’m being honest with myself and what life feels like to continue in this life without you – which is still hell on earth every.fucking.day.

I think I am going to throw up now.

Thank you for being my eternal sunshine.

10153110_695445757163440_4215550584548568041_n

Stay with me, Sweet Boy.

xoox,

Momma

Advertisements

Eddie Vedder. Mookie Blaylock. Mr. President.

Diddy,

As you know, I’ve recently formed an unlikely – yet totally healthy, obsession with Pearl Jam. How they ever managed to slip off my musical radar, I haven’t a clue. But it’s a damn shame. Nonetheless, every time I hear a song by Pearl Jam, I have a visceral reaction of sorts. Their lyrics seemingly lace through my tattered heart and wrap around my torn soul, and somehow make me feel a little less hollow.

Eddie Vedder, in particular, possesses talent which I feel is uncanny and I am certain goes unmatched. He should probably be President. I swear the man could croon the world into peace. But, I’ll settle for him singing you into a peaceful slumber. After all, you are my entire world.

Sleep tight, wherever you are. Here is your lullaby for tonight…a la Mr. President.

I miss you desperately. I love you even more.

Stay with me, Sweet Boy.

xoox,

Momma

i’ll up the ante again. and again.

Paxton,

A memory of you popped into my mind’s eye this morning. You were happily bouncing and cooing away in your bunny seat, while smiling at your (adorable) reflection in Mr. Cow. As always, I recalled every last detail with acute precision: from the the tiny crook in the lobe of your left ear, to your almost-but-not-quite-off-centered smile, down to the way your arm involuntarily pumped into the air. Your half-excited, half-serious voice echoed in my ears and straight through my bones.

It didn’t take long before I began negotiating, with no one in particular, for a deal they couldn’t refuse. Bring you back to me. I pledged anything – everything, in exchange for you in my arms. My desperate negotiation ended the same way it always does; with the harsh realization that no matter how grandiose or lavish my ante: it will never be enough. You aren’t ever coming back.

Should anyone still find validity in the age-old, psychological Stages of Grief, your Momma must be stuck smack dab in the middle of the ‘Barging’ stage. If you ask me, there is simply nothing universal about the time or way in which a person grieves. Suggesting that a prescribed way to mourn the death of your only child exists, is as insulting as it is ridiculous. In fact, I am quite certain it makes perfectly good sense that I find myself attempting to strike a deal with the universe to let me have the love of my life back in my arms.

Without a doubt, and without pause, I swear on all things good and pure, I would give anything…everything, to have you back again.

I believe it’s just about time for your afternoon nap. Allow the rain falling from the sky wash away any tears you’ve cried today. Let the lyrics of your afternoon lullaby line your soul; I mean every last word. Fade into a peaceful slumber. I will be right here when you awake. I will be here forever thereafter, too.

I miss you. I love you. I hope you catch the kisses I throw into the sky for you.

xoox,

Momma

P.S. Today is April 26th. You’d be 26 months old today. I am so sorry.

 

 

A question. An abyss. A little boy I miss. (Plus, I’m just sad.)

Paxton,

As part of my preparation for the “opportunity-I’m-not-still-not-talking-about”, I was provided an array of ‘assignments’. The purpose of this particular one: encourage deeper reflection about being your Momma from so far away. (As if I need any?)

The query was simple, “A bereaved mother is….”. The question immediately irritated me. Perhaps because someone so revered in the realm of documentary styles and genres: grief, loss, and bereavement being no exception – would ask something so damn dumb. As the seconds ticked by, I pulled out my Warrior-side and began to generate an answer. It’s actually a non-answer; which, in my opinion, is even more fitting. Even better news: it turns out Momma is still spicy enough to accomplish something – merely for the sake of conquering a challenge.

I quickly determined the definition must lend itself to be ever-evolving. It must also allow for the flexibility to reflect the day, hour, or moment I just survived; or the particular soft wave of grief I am currently riding.

A bereaved mother is…

…the woman who has felt pain in every single cell in her body. Literally, from the tips of her toes to the ends of her hair. The pain is indescribably and mercilessly physical.

…the woman who shies away from carrying bags of groceries, or laundry baskets against her chest – especially with the aide of her hip; as doing so most always morphs the bundle into the precise size and weight of her phantom son.

…the woman whose knees have buckled when hearing the sounds of little boys, calling out: “Mommy.” “Mommy!” “Mommy?”…a mommy who will tuck her child into bed – while she will stand, tears falling atop the unused changing table, in her son’s, otherwise barren bedroom.

…the woman whose primal mourning, done only when alone, is still shocked & frightened by the supernatural sound of this mourning. As it serves as a reminder that she is but a wild animal – capable and willing to do anything to protect her young, as well as the fact that she failed miserably at the task.

…the woman entrapped by grief’s incessant state of craze, finds herself pacing the hallways late at night: unable to focus long enough to string two sentences together: intolerant of music, t.v.’s, or voices projecting “too loudly”: sensitive to lights: irritated by a host of other benign stimuli.

…the woman who has accepted that no form of self-induced suffering will suffice in filling the chasm of her loss. Instead she finds herself Googling “…how to construct time-machines.” In moments of lucidness (which sometimes follow) she realizes the depths of her desperation. Instead, she Googles: “…how to initiate the process of self-institutionalization.”

…the woman who wills herself to trade places with her dead child, a hundred times a day – and two hundred times a night. But continues to awaken to a new sunrise – almost always wishing she hadn’t.

…the woman who gives extra generous tips, extra gentle eye contact, extra caring smiles… to the young boy who crosses her path. Despite her keen awareness that he is someone else’s son, she can’t help but pretend – if only for a fleeing moment – that he is her own.

…the woman who knows how to ingest just enough shallow breathes, to keep from throwing up – until she makes it home.

…the woman who refuses to hold another baby – though her arms ache from emptiness – because she is adamant that the last baby she’ll ever hold, will be her own son.

…the woman who wishes she knew it was not an eye infection, or the ‘wrong’ baby formula – just a little sooner.

…the woman who will always, always be consumed with guilt – no matter how many people tell her it wasn’t her fault.

…the woman who will love her sweet boy forever and always…and then a little bit longer.

A bereaved mother is the woman who has a story about a bittersweet survival that does not include a fallacious or contrived “end” to her grief after a prescribed six month period. Her story is a true story of anguish – absent the “happy” ending. Not to say, at some point, she won’t be capable of pure love and joy and contentment. Alas, there is no bypassing the tortures caused by the death of her beloved son. The effects of his absence are perennial, and relentless; the aches – much deeper than the unsuspecting world believes.

Yes, Paxton. Cancer came along and stole everything from us. Everything. The wreckage which has ensued is so grim, I cannot yet begin to speak of it.

However, bereavement, grief, a parallel universe…another lifetime, have nothing to do with how I define the distinct honor of being your Momma. I am the only woman in the world who is lucky enough to be your Momma. Plain and simple: I am your Momma; you are my son. Our bond is far stronger than the grips of cancer…our love is far deeper than the depths of grief.

I will love you forever, and ever…and, then a little bit longer.

IMG_1122

Stay with me, Sweet Boy.

xoox,

Momma

hemingway. shoes. fake therapy…brought to you by the number 6.

Diddy,

Today Ernest Hemingway spoke to me. He’s a legendary author and journalist. He won the Nobel Peace Prize. He passed away on July 2nd. (Literary terms deem this dramatic irony. Or perhaps it’s considered situational irony? Regardless, it’s all kinds-a fucked up.) His ‘message’ took my breath away. That doesn’t happen easily these days.

1148975_578712828836734_1303906587_n

A life story in six words? Six wouldn’t suffice to tell yours. However, Hemingway certainly chose his wisely. 

Speaking of shoes; your collection rocks. You have three pairs of Jordans. Fly, blue Vans – Ugg slippers too.

No, I’m not writing in Haiku. I’m just making six word sentences. Six times two always equals twelve. Cancer always equals fuck, fucking you. I’m sad, tired, angry, and scared. Six is my fake therapy tonight.

You didn’t wear your baby shoes. Rest assure, they’ll remain forever yours.

Thank you for being my son.

I miss you; I love you.

Stay with me my Sweet Boy.

xoox,
Momma

BC. AC. FuC. And Uncle Dave sings Baby Blue for you. (Don’t tell Auntie Kupa.)

Paxton,

When I lost you, I lost so very many things: my only child, my chance to mother you; all the things you were and would have been; our little family; my future; my place and identity; my confidence; my naïveté; my view of the world as a safe and just place.

I can easily say my life is now divided into two distinct parts: Before Cancer (BC) and After Cancer (AC). In addition to mourning the loss of you: my dream come true – I’ve also mourned over the version of me I lost when you died. Some days, I long to have her back. Not as often, or remotely as desperately, as I long to have you back. Yet she is gone. You are gone. I am here: living in my AC world. Without you. And without the Danna I knew for 38 years.

Most days, however, I would not trade in the new version of me. (Other than if to have our entire BC world back…the one where you never got sick, you never suffered, and we never kissed good-bye one.last.time.) Given no choice in the matter, I have morphed into a different woman. Naturally, there are parts of me which are still broken and empty. Some are broken beyond repair. How couldn’t they be? When a parent loses a child, they lose a part of themselves. Beyond that, they are permanently rocked to the very core of their soul. The only way around this truth – is if they simply do not have a soul. However, there are also pieces of me which are far wiser, stronger, and more refined than that of my former self. All of which can be attributed to the fact that particles of you flow throughout my body and are contained within my soul.

Perhaps my former self needed to lose her naiveté, her blind trust, and her belief that those she loved would never betray her. She needed to become strong – in a entirely different capacity: one which allowed her the strength to see the world as it is, not how she willed it to be. She needed to acknowledge that the most difficult times do, in fact, reveal people’s true character – and she had to accept all which was unveiled. She needed to learn, the really hard fucking way, to always trust her god damn instincts.

Though few and far between, there are times where if I quiet my mind long enough, I vividly see the gifts you’ve left for me. Despite the depth and breath of the pain I experience from having lost you, I see reminders all around that I, too, have gained. Not enough. Not nearly enough gain for the hefty, immeasurable price of losing you. Still, you must always know that you alone are a far, far more profound gift than the torture and the despair of living in my new world without you.

My AC world is mournful and tenuous at times. Yet it is also beautiful, meaningful and sublime in a way I never imagined. Gibran describes it best when he prophesied that only after having really “…looked into the eyes of such sorrow” can one find their way to pure joy. For the infinite joy you have brought into my life, and the promise you continue to bring…I remain humbly and infinitely indebted.

It should come as no surprise, Dave has a little diddy for you, Diddy. Allow him to serenade you into a peaceful slumber tonight. Rest your head against my chest. Close those baby blues…Momma is right here.

Thank you for helping your Momma become a better, stronger, wiser woman. 

Stay with me, Sweet Boy.

xoox,

Momma

Turkey. Tears. And a whole lot of Thanks.

Paxton,

Today is the day the entire world stops to do what we should do all year round…pause and give ‘thanks’ for all of the blessings in our lives. There are people who believe positive thinking and gratitude are the answers to life’s aliments. I agree. A positive attitude and posture of gratefulness can help many bleak situations. But I guess gratitude doesn’t come naturally when you are grieving the loss of your only child – and the loss of everything else you loved too. All the positive thoughts in the world aren’t going to change the fact that you are dead. All the positive thoughts in the world aren’t going to bring my little family back together. All the positive thoughts in the world certainly aren’t going to fill the empty chair at the Thanksgiving table tonight.

This is not to say I don’t actively engage in positive thinking. Today alone I had many positive thoughts. I am grateful for the fact that most people will never have a Thanksgiving where their 7-year old niece holds their hand under the table and all-too empathetically whispers, “I miss him too, D.D.” Nor will they know of a toast which is finished with their 4-year old nephew innocently nodding his head while sincerely proclaiming, “Here’s to Paxton’s spirit all around us!” I’m also thankful most people will never have to shamefully throw out an entire side-dish of cranberries, because their tears fell into the bowl before they realized they were standing over it – silently sobbing.

Bring to the table a cornucopia of blessings and I’ll bring you my infinite pain. Let’s put them both on the empty chair where you should be…21 months young…squishing pumpkin pie between your chubby little fingers and putting it in your adorably sweet face.

Asking me to focus on my blessings and not recognize the fact that you’re not here, is like telling me to be grateful I am still able to breathe – even though the atmosphere has run out of oxygen. It simply isn’t possible to be one or the other. That being said, just because I continue to grieve doesn’t mean I am incapable of being grateful for the other blessings in my life. But it is not one or the other. I miss you with every molecule of my being; I would give anything to have you back. Yet I am still deeply grateful for the three little souls who will sit with me at the table tonight. I am thankful beyond measure to have Lala & Uncle Stephen in my life, and also living so close to me. I am grateful for my parents – who continue to provide unwavering love and support through each step of this, the very darkest, walk of my life. I am thankful that I truly do have the most devoted, strong, beautiful friends on this side of the universe. Who, even though they think as much, have still never said, “We told you so…“.

I am grieving. I am grateful. The latter can’t cure the former, and the former doesn’t negate the latter. As a bereaved Momma, I have unwillingly learned the delicate art of holding infinite space for both. My new life is a heartbreaking juxtaposition of contradictions. Just as I possess both the immeasurable love of having you, and the immeasurable pain of losing you. My heart is broken because you are gone, but it is also full because you were here.

This slideshow requires JavaScript.

There is never a moment I am not thinking of you…wishing you were here with me, worrying about you…and eternally grateful that you are mine.

I hope you are happy, Little Turkey.

Stay with me, Sweet Boy.

xoox,

Momma

a spicy monkey. a high-jacked computer. and my day is made.

Sweet Diddy,

One of my girls at school needed to take her test at my desk today. The other 15 places to sit in my classroom simply wouldn’t suffice. While she was at it, she made herself right at home. As she sat at my desk she ate my pretzels, used my hair brush, tapped around on my computer, noticed my Pandora was open, and created herself a new radio station on my account. Why not? When I busted her, I pretended to be mad. Like all my ‘kids’, she knows I (mostly) pretend to be mad at them. Disappointed is all-together different. Mad? Well, that almost always just doesn’t happen. First of all, these spicy monkeys keep Momma’s heart beating. Secondly, they need more love than most others in the world. Moreover, they deserve even more love than they need. And like I said…they keep my heart beating.

It’s going on 5:40 p.m., and I’m still at school. As you already know, Momma need not rush off to the gym, or to the grocery store in order to be home in time to let Lucas out and/or to make dinner….much less to pick you up from day care, get you fed, bathed, and ready for bed in time to snuggle up and read a bed-time story – or three, before tucking you in for a peaceful night’s sleep. Instead, I take my time perfecting innocuous tasks, before aimlessly venturing down familiar hallways, through familiar doors, to a familiar parking spot – straight into an unfamiliar life.

As I contemplated whether I would go to the gym, or just run extra-long when I got home, concurrently further avoiding the transition into a new life I never wanted, a song began to play through my SMART Board. Instantly entranced by the lyrics, I closed the 38 windows I had open so I could see the name of the song and artist. (No. I didn’t do what normally functioning people do, and save the work which I was perseverating over perfecting in the first place. It’s fine. I’ll try again tomorrow.)

The tears which fell from my eyes have already left salt-marked stains on my completely lame, but also completely free, GO ARMY! desk calendar. I instinctively know they will serve as an unlikely source of comfort in the upcoming weeks. As I will recall this moment with heightened precision. For it is one of those rare times…that I know you are with me.

Thank you for helping my spicy monkeys love me. Thank you for helping them embrace my broken spirit, my shattered heart, and my many, many flaws. They are of your most brilliant and treasured gifts yet. Thank you for sending me this song – compliments of the spicy ones, who take the liberty to high-jack my Pandora account, much like they have taken the liberty to high-jack my heart…because they know damn well, it’s the only way in anymore.

Here is your lullaby for tonight. It’s from Momma…and one of her spiciest monkeys.

My arms should’ve been fierce enough to have kept you safe.

Stay with me, Sweet Boy.

xoox,

Momma

a defense lawyer stops me in my tracks. because he knows you.

Paxton,

Tonight I ended what was a very difficult week with a “not-so-happy” hour with two of my lovelies from BCHS. I wasn’t in the mood to be there, but familiar with their persistence in integrating me into the world at-large, I knew it’d be easier to join them. So I did. I made it to about 6:30 before I was ready to leave. As I approached my car, a man parked next to me quickly popped his head out from the backseat of his car where he was putting his child in a carseat. He said, “Excuse me. What does your license plate say?” I knew he was talking to me; but I froze – speechless and paralyzed. He continued, “Does your plate say, Paxlove”? I studied his sincere face and steadfast eyes as I faintly replied, “Yes. Paxlove.” He excitedly persisted, “Is it for Paxton? The baby? The little Peaceful Warrior?” I almost collapsed onto the goddamn pavement.

Before my legs had a chance to give out, he broke into a 40 yard dash in my direction. As he jogged towards me he yielded his “Paxton” bracelet in front of him like a white flag. Meanwhile my friend took over the talking part and proudly proclaimed that I am your Momma. Once in front of me, he put the bracelet an inch away from my eyes and exclaimed (repeatedly) that he wears everyday. He went on to explain how he learned about you and your brave fight. He said he attended PaxFest and donates to your foundation. Most importantly – he told me how he finds daily strength and inspiration through your brave soul.

As I attempted to absorb the scene unfolding around me, I noticed his wife had come out of their car and was now standing just steps behind us. Her hand was over her mouth. Tears were streaming down her face. As our eyes met, we innately stepped towards each other and hugged tightly. Through a tear-filled voice, she told me how you changed the way she mothers her son…and that she marvels at how I find the strength to continue to live without you. These kind-hearted people said so many endearing things to me. All of which I will hold close to my heart for many, many moons to come. The dad ended the conversation by telling me he is a defense attorney and that whenever he is in trial, he rubs his “Baby Paxton” bracelet to find strength and clarity. For he is reminded that whatever he or anyone in the court room is experiencing, or has experienced, pales in comparison to what “Baby Paxton” endured.

The entire time this couple talked to me, I literally did not utter a single word. In hindsight, my inability to speak makes me want to punch myself. I should have taken out my wallet and shown them pictures of you. And told them how everyone who was lucky enough to be in your presence noticed how peaceful (and beautiful) you were. I should have shared with them how (before you were sick and stopped feeling hungry), you would stop mid-suck while eating your bottle, smile right at me – and then happily resume eating. Or let them know your favorite CD is Coldplay’s Rock-a-bye Baby, and that you loved when we would dance around the dining room and sing, “I like to eat, eat, eat apples and bananas.” I should have relayed the stories of how you’d stare into Mr. Cow mirror and “Ooouuuooo!” so fiercely at the site of your adorable reflection that the entire house would erupt in laughter.

On top of failing to tell them any of the many things that make you incredibly special, I deeply regret that I didn’t think to ask them their names. While I hugged the husband, I did manage to eek out the words, “Please don’t take that bracelet off.” (He assured me that he wouldn’t.) With the exception of one simple sentence, I stood mute as two strangers told me how you have changed their lives. In exchange, they allowed me to embrace them as though they each contained a small part of you. I am sorry if I hugged them too tightly. I am more sorry I didn’t tell them about any one of the multitude of things which make you my uniquely perfect Paxton.

Very early this morning I was overcome by one of the greatest moments of despair I have yet felt. I don’t entirely know why. I guess this roller coaster of grief, bereavement, or grief-that-interrupted-the-initial-fucking grief will never make any sense. I do know that I literally begged you to send me a sign if you were still with me. Anything to prove that despite the emptiness in my stomach and the hollowness in my heart, I am not entirely alone in this world.

I believe with all of my heart, you sent that man to me tonight. You rescued me from the abyss of grief which I must consciously ward off from swallowing me whole. More than anything in this entire world, I would give anything – anything – to be the one saving you. It should have been me. Never you.

IMG_0752

I miss you. I love you. I’ll look for you in my dreams.

Stay with me, Sweet Boy.

xoox.

Momma